Key Highlights
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The Parkinson’s Progression Markers Initiative (PPMI) has launched two pioneering programs, the Return of Research Information (RORI) program and the Randomized Disclosure Assessment (RAD-PAC) clinical trial, to responsibly share individual research results with participants. This effort empowers participants by giving them access to their own data while also providing critical insights into how sharing such information may affect both the participants and the quality of future study data.
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A new bibliometric analysis reveals that only 3% of global dementia research publications come from Latin America and the Caribbean, with Brazil producing nearly half of those. This concentration highlights major gaps in research themes and collaboration across the region, underscoring the urgent need for stronger cross-country partnerships and more investment in applied and policy-focused studies.
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